Monday, April 28, 2008

Song.

I bounced over to my friend Karen's blog tonight, and she had the link to a video that I think I've put on here before...maybe.

This song and video will knock the wind out of you and probably bring you to tears. But it is absolutely gorgeous. Maybe because this week is tough. Maybe because I'm starting to get nervous for our ultrasound on Thursday. Whatever it is, this song just took my breath away tonight.

The song is called "I would die for that" by Kellie Coffey.

Here is a link to Kellie Coffey's story

Karen is a private person, but she shared in her post related to this video about some of their fertility struggles. All I can say is that life is not fair. Please keep her in your thoughts. I know that extra prayers never hurt anyone. Karen's original due date was July 17, 2007. That is the same day that Angela was born. An unfortunate, but special tie in our friendship.

Tuesday, April 15, 2008

More OI Info

Lori called tonight to tell me about an article that she saw on her CNN local section, that happened to be on Cleveland.com. The article was about a family from Bay Village (where I'm from) that battled OI. Unfortunately, they have a genetic history.

Here is the link: http://blog.cleveland.com/health/2008/04/family_adjusts_to_life_with_ra.html

I just can't believe how much OI has been on my mind lately, and then to be made aware of all of this new information/articles is crazy.

He has a blog (he needs to update) and a foundation called "Special Bones Foundation". I've added both links to my blog and website favorites. I let him know that I would be interested in helping him with any events he helps put together. Something close to home that I can actually contribute to. The oif.org site has events too, but they're never local.

Read his story, it's very interesting, unfortunate, but insightful.

Who knew my blog could be so educational!?

Monday, April 14, 2008

I Learned Something New Today

I regularly receive emails from the Osteogenesis Imperfecta Foundation (http://www.oif.org/). I opened todays email, and clicked through to see the new updated site they mentioned. Within the new site were some stories written by people with OI.

In one of the stories (http://tinyurl.com/4mzz8q), I learned that the man who helped draft and push through the Americans with Disabilities Act had OI. His name was Paul Hearne. I did a quick web search and found this article--> http://tinyurl.com/3mhxly

I did not know that.

Friday, April 11, 2008

Laugh out Loud Funny

OMG. I was reading one of the boards I frequent. The poster requested something funny to cheer her up because she was having a bad day. In natural fashion, the girls came through and posted some pretty funny stuff.

Here is a link to a really funny newsman acting like a goof.

Enjoy!

http://tinyurl.com/4ahzgv